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WBU October 2016 e-Bulletin and Accessing WBU Website using a Mobile Device – Survey

Nov 02 2016

You can download the Documents Here!

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e-bulletin-october-2016

Let’s get it out there!

Oct 19 2016

Hi everyone: This is our final reminder re our invitation to you to join us
on October 29 for a countrywide tele town hall “Let’s get it out there.”
We want to thank those of you who have taken the time to register and we are
looking forward to some very exciting and interesting interaction.
Please note: For those of you who have registered, you will be emailed the
guidelines for the rules of engagement starting as of Oct 22. Registration
closes at noon Eastern on Wednesday 26.
We again thank you and now invite you to read on below.

In this announcement: You’ll find info about our tele town hall, bios of
our team; panelists, sponsoring individuals, moderator, and finally some
thought provoking questions to help you get started.

The beginning of each section is marked with 5 asterisks.
We thank you and take this opportunity to wish you a very happy
Thanksgiving.

*****
Save the date!

On October 29 2016, a group of advocates from the blind and visually
impaired community in collaboration with some organizations of the blind
will be holding a tele town hall titled “let’s get it out there.”
A title that was derived through the creative imagination of one of our very
own; Irene Lambert of Montreal.

Time: 1:00 pm Eastern
10:00 am Pacific
11:00 am Mountain
Noon Central
2:00 pm Atlantic
2:30 in NewFoundland

This town hall meeting is being jointly sponsored by the following:
Individuals – Richard Marion, Robin East, Anthony Tibbs, Donna Jodhan.
Organizations –
Canadian Council of the Blind (CCB),
Citizens with Disabilities of Ontario (CWDO),
Getting together with technology (GTT).

The objective of this tele town hall is to give participants an opportunity
to voice their opinions and suggestions in a meaningful and constructive way
on how we as a community can become a stronger voice for consumer advocacy.
What can we do in order to move forward in a positive way.

This tele town hall is not meant to be used as any sort of decision making
mechanism but rather as an open forum for constructive discussion.

Meet our panelists!
Richard Marion, Anthony Tibbs, Melanie Marsden, Albert Ruel, Paul Edwards.
Our moderator is Jane Blaine.
You can read more about our team in the section following this one.

We have prepared a short list of questions which you can use to help you to
spark and formulate your ideas and this is pasted at the end of this email.

If you wish to participate then you may send an email to us at
richard.marion@shaw.ca
You will receive a confirmation of receipt.
During the week of Oct 24 you will receive an email with details of the call
in info along with the rules of engagement.
Registration will close at noon Eastern on Oct 26.
We look forward to hearing from you.

Signed
Richard Marion
Anthony Tibbs
Robin East
Donna Jodhan

*****
Introducing our team!
Meet Richard Marion! (co-sponsor and panelist)
Currently Richard Marion is living in Vancouver British Columbia.
Richard has been involved in advocacy for most of his adult life so far.
He first expressed interest in working on issues concerning people with
disabilities as a student in college when he got involved with the
provincial affiliate of National Educational Association of Disabled
Students. From this point he was hooked and continued working on issues
concerning people with disabilities until now. Over the years, he has
taken a more specific interest in the blind consumer movement in Canada
and has been an active member of Alliance for Equality of Blind
Canadians and served as the organization’s president in 1998 when it was
still known as NFB:AE. Over the years Richard has also been involved in
a number of advisory processes including sitting on CNIB advisory
committees and currently chairing the TransLINK Access Transit User’s
Advisory Committee.

Meet Robin East! (co-sponsor)
Robin East has a Bachelor Degree in Social Work, a Certificate In
Rehabilitation Personal Development, and Professional International
certificates in Adaptive Technologies and Accessibility Guidelines. He has
worked as a Teacher Associate, a Behavioural Therapist, and finally, an
Officer with the Federal Public Service. Add to this volunteer work with
the Community, the Union, the Province of Saskatchewan, a number of national
charitable advocacy organizations, as well as local accessibility and
advocacy organizations.”An advocate is like a catalyst that mixes with an
ally and inspires empowerment” is a coined phrase of Robin’s. He believes
in working with ally’s to overcome barriers and address common issues. He
has been involved in advocacy since the early 80’s and continues to be a
strong leader in which ever role he takes on.

Meet Anthony Tibbs! (co-sponsor and panelist)
Anthony Tibbs has more than six years of experience on the national
board of the Alliance for Equality of Blind Canadians as treasurer and
then president, and has served on a number of other boards over the year
as well (including Guide Dog Users of Canada). With a business and law
background, Mr. Tibbs’ day to day job is as a litigation lawyer (civil,
class action, human rights, administrative law), but he continues to
support the charitable and not-for-profit organizations that play such
an important role to the community.

Meet Donna Jodhan! (co-sponsor and coordinator)
Donna is a past president and second vice president of the Alliance for
Equality of Blind Canadians. She is also a past communications director of
Canadian Blind Sports Association and she is the founder of Barrier Free
Canada – Canada sans Barrières.
Donna is an entrepreneur, blogger, author, audio mystery writer, ongoing
advocate, and law student. She firmly believes that whatever we do today
will affect our kids of the future and that they are the ones that we need
to protect, assist, and nurture.

Meet Albert A. Ruel! (panelist)
Albert has found his passion in the field of access technology for people
who are blind or partially sighted. He has enjoyed a 22 year career in the
not-for-profit rehabilitation, technology training and advocacy sectors for
people with vision impairments. He holds a Social Service Worker
Certificate and is passionate about helping people connect with their needs.
Most importantly, Albert is solution-focused, flexible, has a positive
attitude and has a great sense of humour.

Meet Melanie Marsden! (panelist)
Melanie Marsden has been an advocate for over 30 plus years.
Part of this journey started while working on her social work degree at
Carleton University in 1989 While rasing two boys she completed her degree
in 1998.
Personally and professionally Melanie advocates for safe effective
parenting.
Any events that are planned are planned from a best practices cross
disability antiopression framework.
“When we all work together ecknowledging each person has a voice we
accomplish more.”
Melanie enjoys assisting others whenever she can and connecting folks to
one another when appropriate.

MeetPaul Edwards! (panelist)
And in his own words:
I was born in San Francisco California and was one of the early users of an
incubator after being very premature. I was left with a little light
perception which soon went away. At the age of seven I moved to Calgary
Alberta Canada and went to school in Vancouver, British Columbia. At
thirteen, my mother decided we were moving to Jamaica and I stayed there
till I was 21. I graduated from high school sort of and completed my
Bachelor’s SPECIAL Honors degree in History at the Mona Jamaica campus of
the University of the West Indies. I was the first blind student to go there
and ended up in Trinidad because I wanted to do a graduate degree in
international relations which I successfully completed.
I met my first wife there and married during my degree and so was faced with
the need to find a way to support her and my first daughter who was pretty
quickly on the way after our marriage. I taught at a small school in the
rural area of Trinidad partly because there was no other job and partly
because I was not sure if I could really teach. I really enjoyed that first
year because all the girls I taught really wanted to learn. Yes, it was a
girls’ school. I was not making disparaging remarks about boys!
After one year I became the senior history master at Trinity College, the
leading Anglican School for Boys in Trinidad and Tobago. Near the end of my
teaching career, I got a graduate degree in Education from the University of
the West Indies in St. Augustine, Trinidad.
When I left Trinidad ten years later I had three children: two girls and a
boy. I moved to Florida where I went to work for the Division of Blind
Services as a rehabilitation teacher. In this job, I went to people’s homes
and taught them skills that would enable them to adjust to visual
impairment. After three years of this, I became a Rehabilitation Counselor
and worked mostly with high school and college students. In 1983, I moved to
Jacksonville to take over as Executive Director of an agency serving blind
people there. In 1986, I moved to Miami as Director of Services to Students
with Disabilities on the North Campus of Miami Dade College, the largest two
year college in the United States. On my campus we served over seven hundred
disabled students a year. I retired from that job in May of 2012.
While I certainly regard my working life as rich and varied, I have derived
much more pleasure from the work I have done as a volunteer and advocate. I
have worked at the local level, at the state level and at the national level
to try to make things better for people who are blind. I currently serve on
the Florida Rehabilitation Council for the Blind, the National Accreditation
Council Board and hold several positions within the American Council and its
Florida Affiliate. I have worked particularly on library issues, promoting
braille and changing laws.
I absolutely believe that I have been given as much by the people I have
tried to help as I have given them. Until I became associated with ACB, I
saw myself as an inferior creature desperately trying to compete in a world
where I could never do quite enough to be accepted. What the blindness
movement taught me is that the only person I have to satisfy is me. That may
sound arrogant and overbearing but that is not how it is intended. I set
high standards for myself and if I can meet them I am likely to meet the
standards of others. I no longer worry about being accepted by society. I
have rights and I will fight to see they are protected. Society does not
need to accept me but they do need to include me. I am proud to be a person
who is blind. I am proud of what I accomplish every day in spite of the
barriers that are there. More than that, I am proud of what every blind
person everywhere accomplishes every day. It isn’t easy to be blind and
anybody who says it is or who suggests that it’s a walk in the park does not
live in the same world I do!
I enjoy modern folk music, fantassy and science fiction and hope that, in
due course, I will find some time to write. The one thing you can be sure I
will not write is an autobiography. My three children are now grown up and I
have ten grand children which is quite enough to keep me occupied and young.
I still have a lot to do and many places where I think I can help. I have
had a good life and only wish I had not been quite so busy. When you don’t
make time to smell the roses, they have often faded before you can enjoy
them!

Meet Jane Blaine! (moderator)
Jane has been involved in programming and administration of blind sport and
para sport for over 30 years. Professionally she is the Executive Director
of BC Blind Sports and Recreation Association and also acts as the CEO of
Canadian Blind Sports. Current interests of Jane’s include the development
of a long term athlete/participant pathway showing how individuals who are
blind or visually impaired enter physical activity and become physically
literate, and move through the stages of long term athlete and participant
development, as well as supporting the research into development of sport
specific classification systems for athletes who are blind. Jane is also
interested in the progress on development of a Canadians with a Disability
Act.

Jane facilitated a previous session for AEBC and looks forward to
facilitating this upcoming session.

*****
Questions for consideration

1. In order to ensure that people who are blind, Partially Sighted or
deaf/blind continue to have a strong voice in Canada,
What do you think the national consumer movement should look like in the
future?
2. Canada is a small country in population. However, it is
geographically quite large. would it be better in Canada to
ensure that on a national level there is 1 organization of the blind
working on projects and advocacy to help
strengthen community activities provincially and locally?
3. National, Provincial and local organizations have tried working in
coalitions. Are you aware of any activities that these coalitions have done?
Would you support a more formal working relationship between the existing
national organizations of the blind?
4. “Why do you think the blindness community is so fragmented in its
approach to advocacy and community activities?”

Blind Advocate Reaches Settlement with Shoppers Drug Mart

Oct 07 2016

October 5, 2016, Vancouver, B.C. – Rob Sleath, on behalf of people who are
blind or partially sighted and Access for Sight-Impaired Consumers (ASIC),
and Shoppers Drug Mart Inc. have agreed to settle a human rights complaint
that will see Shoppers Drug Marts in British Columbia offer prescription
medication information in an audio format throughout the province.

“This is definitely a step in the right direction for people who are blind
or partially sighted in terms of having independent access to essential
prescription information,” said Rob Sleath.
“Since my kidney transplant, I have been on a regimen of many different
medications. Having prescription medications with attached audio labels
means I can independently, confidently and safely manage my medications
without fear of consuming any one of them incorrectly. ASIC pursued its
complaint against Shoppers Drug Mart to eliminate the barriers faced by
tens of thousands of people like me in B.C. who live with sight loss.”

As of September 1 of this year, following a human rights complaint filed
on June 2, 2014, Shoppers Drug Mart Inc. has agreed that:
1.   Shoppers Drug Mart pharmacies in B.C. will
make available to its customers an auditory labelling service for
prescription medication information at no cost to the consumer. Auditory
prescription labels will contain the same information as on the printed
prescription label
– patient’s name, name and strength of
medication, dosage instructions, quantity, prescription date, refills
remaining (if any), prescriber, name and telephone number of dispensing
pharmacy, prescription number, and warnings.

2.   Shoppers Drug Mart pharmacies will ensure
that, absent of exceptional circumstances, the time from when a
prescription request is made to a pharmacy to the time the medication is
available for pick-up is no longer than 48 hours during business days
(excluding statutory holidays and weekends). For prescription renewals,
the medication should be available for pick up at the same time as the
prescription would be available if prepared with a print label.

3.   Where a patient cannot arrange to pick up
the prescription within a reasonable time after it is ready, the Shoppers
Drug Mart pharmacy may deliver the medication to the patient free of
charge where the delivery is within the pharmacy’s regular service
territory.

“While this is a positive outcome for people who are blind or partially
sighted in B.C., it should be noted that delivery within 48 hours is not
equal to the service provided to consumers who are sighted,” said Sleath.
“Furthermore, we are disappointed that Shoppers Drug Mart has chosen only
to offer audio labels, and not the broader range of accessible formats
including large print, braille or QR codes that can be accessed with a
smart phone.”

Sleath and ASIC will partner with other blindness-related organizations,
including CNIB, to encourage Shoppers Drug Mart, and all other pharmacies
offering this service, to close this discriminatory delivery gap.

“This is a victory for people with sight loss, and their efforts to live
fully independent lives,” said Diane Bergeron, CNIB’s Executive Director,
Strategic Relations and Engagement.
“But it is only the first step towards creating an inclusive system that
incorporates the needs of persons with disabilities. This win in B.C. is
just the beginning. ASIC will be partnering with CNIB, where together, we
fully intend to fight to make prescription labels a mandatory component in
all pharmacies across Canada.”

Audio labels are encoded radio-frequency identification (RFID) labels that
are affixed to the bottom of a prescription bottle or container.
The information on these labels can be accessed through a ScripTalk
Reader, which is supplied and delivered by En-Vision America at no cost to
the consumer through any Shoppers Drug Mart pharmacy in BC. Accessible
prescription medication information using audio labels are also available
through all Save-On Foods, PriceSmart, Urban Fare, Bulkley Valley
Wholesale, Overwaitea, London Drugs and Peoples Drug Mart locations.



About Access for Sight-Impaired Consumers

Access for Sight-Impaired Consumers (ASIC) is an independent,
consumer-driven advocacy coalition that addresses issues which affect
British Columbian residents who are blind, deafblind or partially sighted.
Many of our affiliate organizations are associated with widely-recognized
provincial or national bodies serving the nearly three-quarter million BC
residents who are affected by one of the four most common eye diseases
which could potentially lead to sight loss. ASIC’s primary advocacy action
plan focuses upon the 64,500 British Columbians who are currently blind,
deafblind or partially sighted.

Our mission is to collaborate with our affiliate organizations and
community partners to increase awareness and understanding of issues
related to sight loss. Our aim is to build inclusive communities for
people with sight loss by promoting equitable access and by supporting
independent living.

Vision Quest 2016: Discover Your Path

Oct 06 2016

Do you have questions about your vision health? Do you want to learn how to access emerging treatments? Do you want to discover your best vision care pathway? If you answered yes, then Vision Quest 2016 is for you!

Every year, the Foundation Fighting Blindness hosts a series of educational conferences across Canada called Vision Quest. Each event is carefully designed to ensure that people living with vision loss and their families can make life-changing connections with Canada’s top eye care specialists and leading vision researchers. Importantly, Vision Quest connects people living with low vision and blindness with a community of support.

“It’s an inspiring day. The best part is to meet other individuals and parents LIVING (not just getting by) with vision loss. To know that there is hope for us is beautiful.” – 2015 Vision Quest attendee

Here are the new and exciting initiatives at Vision Quest 2016:

Do you want Vision Quest to come to your city! Let us know!

World Sight Day 2016

Oct 04 2016

Dear members,

Please find attached the WBU press release for World Sight Day 2016. You will also be able to find this press release on our website on the home page and “News” section in October as well.

We hope that this press release will be a useful information source and we invite you to edit it as needed for your use locally. Additionally, if possible, please send me examples of any press coverage that you receive regarding World Sight Day.

With kind regards,

Caitlin Reid

Communications Officer | Project Coordinator – Marrakesh Treaty Ratification and Implementation Campaign

World Blind Union

1929 Bayview Avenue

Toronto Ontario

CANADA M4G 3E8

Tel: +1 416 486 9698

Fax: +1 416 486 8107

Mobile: + 1 647 281 4477

Email: caitlin.reid@wbu.ngo

Website: www.wbu.ngo, www.worldblindunion.org

Twitter:@BlindUnion

 

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