Biosimilars Survey 2019

The GI Society recently launched a survey on patient opinions and outlook regarding biologic medications, including biosimilars.

They’re inviting Canadian patients, from all disease areas, treated with biologic medications. They will use the information gathered anonymously and in aggregate to shape future programming and to inform community members, healthcare professionals, and health policy decision-makers.

Here is the link to the survey:

Inspire Democracy webinar for stakeholders – Webinaire d’Inspirer la démocratie destiné aux intervenants

(English follows)


Nous organisons un webinaire important dans le cadre du programme Inspirer la démocratie destiné au réseau d’intervenants. Le webinaire portera sur la campagne d’information des électeurs et les produits de communication connexes qui vous aideront à communiquer des renseignements sur où, quand et comment s’inscrire pour voter.

Le webinaire aura lieu le 25 septembre, à 13 h (HE).

Si vous souhaiter y participer, inscrivez-vous en nous envoyant un courriel au plus tard le 21 septembre.

Nous vous remercions de votre soutien continu.

Outils et services de vote le jour de l’élection :

Good afternoon,

Inspire Democracy is hosting an important webinar for its network of stakeholders! Our focus will be on the Voter Information Campaign and related communications products. These products will help you share information on where, when and the ways to register and vote.

The webinar will be held on September 24 at 1:00 p.m. ET.

If you wish to participate, please register by sending us an email before Sept 21.

Thank you for your continued support. 

Voting assistance tools and services on election day:

AMD PSA at the 2019 Toronto International Film Festival

The PSA can be seen at Masters Programme screenings at the 2019
Toronto International Film Festival

Video Description: Dr. Peter Kertes, Dr. Cyntia Qian, and Dr. Varun Chandhary talk about their favourite movie moments while a black mark grows over their images from the center of the screen. The words, Movies Stay with you. So should your vision. Followed by, Spot the symptoms of AMD. The logos appear for the Fighting Blindness Canada, Canadian Retina Society, and the Canadian Council of the Blind.

Survey data needed!

Hi All,

There is a new treatment approved by Health Canada and soon CADTH will be requesting patient group feedback to get it listed/recommended for the provincial formularies. To this end we will be working with Fighting Blindness Canada on a joint submission and to do this we need to have survey data.

Have your say and fill in the survey by following the link below.

International Federation on Ageing Conference 2020

15th Global Conference on Ageing
Niagara Falls, Canada
1-3 November 2020
Rights Matter
Master Classes Available
Pre-conference Master Classes Available

Let’s hear from and #network with other campaigners and #activists who are aiming to shift negative social norms on #ageing and towards #OlderPeople at #IFAConf2020! Registration now open: #RightsMatter
Abstract Submission

Are you undertaking #innovative research in the field of #ageing and #health? Abstract submission is now open for #IFA2020 : #RightsMatter
15th Global Conference on Ageing
Niagara Falls, Canada
1-3 November 2020
Rights Matter
Submit your abstract

Shelley Ann Morris and Kim Kilpatrick on Challenges & Change with Craig Oliver

On July 8th Shelley Ann Morris and Kim Kilpatrick from the Canadian Council of the Blind spoke with Craig Oliver about being visually impaired community radio hosts on CKCU’s Welcome to My World, a program devoted to the issues facing persons with disabilities. You can watch the Youtube video here, or click the link below to watch on AMIs site.

Shelley Ann is the voice you hear when you call the national office, and Kim is the head of the GTT Program. These are hard working ladies, both for the CCB and in the wider community.

New Air Passenger Protection Regulations

Air Passenger Protection Know your rights.  New air passenger protection regulations.  Canadian Transportation Agency.

July 15, 2019 – Gatineau, QC – Canadian Transportation Agency

This post from

Starting today, passengers have new rights under the Canadian Transportation Agency’s (CTA) Air Passenger Protection Regulations when they travel by air. The new regulations, a major CTA regulatory initiative, require airlines to meet certain obligations towards passengers, such as:

  • communicating to passengers, in a simple, clear way, information on their rights and recourses and regular updates in the event of flight delays and cancellations;
  • providing compensation of up to $2,400 for bumping a passenger for reasons within the airlines’ control;
  • ensuring passengers receive prescribed standards of treatment during all tarmac delays and allowing them to leave the airplane, when it’s safe to do so, if a tarmac delay lasts for over three hours and there is no prospect of an imminent take-off;
  • providing compensation for lost or damaged baggage of up to $2,100 and a refund of any baggage fees; and
  • setting clear policies for transporting musical instruments.

To help passengers navigate their new rights, the CTA has launched an online service for air passengers at This dedicated website is a one-stop-shop for air passengers to learn about their rights, file an travel complaint, and find tips for hassle-free travel.

Beginning December 15, 2019, airlines will also have obligations towards passengers during flight disruptions and when seating children.


“This is an important day for the millions of Canadians who take flights to see family and friends, visit new places, do business, or seek medical treatment. The Air Passenger Protection Regulations establish clear, fair, balanced obligations that will help ensure fair treatment when people travel by air – whether they’re flying from, to or within this vast country.”
Scott Streiner, Chair and CEO of the Canadian Transportation Agency


In May 2018, the CTA began developing Air Passenger Protection Regulations to establish airline obligations towards passengers, including minimum compensation levels and standards of treatment in different circumstances.

The CTA consulted broadly for three months with the travelling public, consumer rights groups, and the airline industry through a variety of channels, including public sessions across the country, online questionnaires, surveys of passengers in airports, face-to-face meetings with key experts and stakeholders, and written submissions and comments. Following pre-publication of the regulations in Part I of the Canada Gazette, the CTA reviewed all feedback received. The CTA took all consultation input into account in finalizing the regulations.

About the Agency 

The Canadian Transportation Agency is an independent, quasi-judicial tribunal and regulator that has, with respect to all matters necessary for the exercise of its jurisdiction, all the powers of a superior court. The CTA has three core mandates: helping to keep the national transportation system running efficiently and smoothly, protecting the fundamental right of persons with disabilities to accessible transportation services, and providing consumer protection for air passengers. To help advance these mandates, the CTA makes and enforces ground rules that establish the rights and responsibilities of transportation service providers and users and level the playing field among competitors, resolves disputes using a range of tools from facilitation and mediation to arbitration and adjudication, and ensures that transportation providers and users are aware of their rights and responsibilities and how the CTA can help them.


Canadian Transportation Agency
Media Relations
Tel.: 819-934-3448 
Follow us: Twitter / YouTube

Protection des passagers aériens.  Connaissez vos droits.  Le nouveau Règlement sur la protection des passagers aériens.  Office des transports du Canada.

International Federation on Ageing 15th Global Conference

Niagara Falls, Canada 2020

Several people waiting to register at the IFA conference.

Registration Open

Alongside a rapidly #ageing population global #inequality exists and the #diverse needs of #olderpeople are apparent. Let’s address inequalities together, at #IFAConf2020. Registration open now:

Abstract Submission

Are you undertaking #innovative research in the field of #ageing and #health? Abstract submission is now open for #IFA2020 : #RightsMatter

A room of people sitting and listening to a presentation.